Jonathan Klein (Chair)
University of Illinois at Chicago

Dr. Jonathan Klein is Professor of Pediatrics and Senior Associate Chair of the Department of Pediatrics at the University of Illinois at Chicago. Since 2014 he has served as Executive Director and Chair of the Governing Council for NCD Child, a global coalition dedicated to inclusion of NCD prevention and treatment for children and adolescents in the non-communicable disease agenda and the SDG global goals. He also serves as the Scientific Director of the American Academy of Pediatrics Julius B Richmond Center, dedicated to prevention of children’s exposure to tobacco and secondhand smoke, and is the NCD technical advisor for the International Pediatric Association. Jon attended Brandeis University, New Jersey Medical School and Harvard School of Public Health, and trained in Pediatrics at New England Medical Center and at the RWJ Clinical Scholars Program at UNC Chapel Hill. He served as faculty at the University of Rochester from 1992-2009 as Professor of Pediatrics, Community and Preventive Medicine and Family Medicine, and from 2009-2017 was Associate Executive Director at the American Academy of Pediatrics, a US-based membership organization of 64,000 pediatricians and pediatric medical and surgical specialists dedicated to the health of all children. JKlein@NCDChild.care

Kate Armstrong
CLAN

Dr Kate Armstrong B Med, DCH, MPH is the Founder & President of CLAN (Caring & Living as Neighbors), an Australian-based NGO formally associated with the UNDPI/NGO. CLAN is committed to a rights-based, community development approach to improving health outcomes for children who are living with chronic health conditions in resource-poor countries. CLAN has been involved in supporting efforts to improve quality of life for children living with a range of chronic health conditions (including Congenital Adrenal Hyperplasia, Diabetes, Autism, Osteogenesis Imperfecta, Duchenne Muscular Dystrophy, Nephrotic Syndrome, Systemic Lupus Erythematosus and Rheumatic Heart Disease) in multiple low- and middle-income countries over the last decade.
With a background in clinical and public health medicine, Kate has been involved in the work of CLAN since 2004, and passionate about international advocacy efforts to promote children and adolescents within the global Non-Communicable Disease (NCD) discourse since 2010. CLAN founded NCD Child as an independent global coalition and platform for ongoing advocacy and action after the September 2011 UN High Level Meeting on NCDs. CLAN was the inaugural Secretariat of NCD Child, and Kate was proud to serve as Founding Chair of NCD Child from 2011 to 2014.

Robin King Austin
Vina Capital Foundation

Robin King Austin has worked or served on boards in the non-profit arena since 1971 with positions in philanthropy, development and most recently, international development. Ms. Austin has spent the last 12 years in Vietnam changing the lives of children and preventing needless death as CEO of the VinaCapital Foundation. The Foundation aims to increase access to quality healthcare for the underserved poor and remote children; to improve capacity in the pediatric health care system through equipment donations and training programs; and to build leadership capacity through programs in education. In 2013, VCF founded Lotus Impact, a social impact investing fund for Southeast Asia. The fund, which will launch in Q1, 2015 will invest in small and medium enterprises that provide a social impact. Seed funding enabled Lotus to make its first investment in KOTO Vietnam creating a new venture in teaching disadvantaged kids baking and operating a bakery which serves the Starbucks in HCMC. Prior to coming to Vietnam, Ms. Austin held NPO positions as Director of Community Relations and Development at Highlands-Cashiers Hospital, Executive Director of Chestnut Hill Retirement Community, and GM for a conservation-based development at Light Chaffin and Associates, all in the USA. She also served as development director for East Meets West in Vietnam prior to founding VCF in 2006.

Swati Bhave
Association of Adolescent and Child Care in India

Dr Swati Yashwant Bhave is the Executive Director of the Association of Adolescent and Child Care in India (AACCI) and the Regional Vice President of the International Association of Adolescent Health (IAAH) 2009-2017. She was President of the Indian Academy of Pediatrics (IAP) in 2000 and Technical Advisor of Adolescent Health (2008-13) of the International Pediatric Association (IPA). Dr Bhave was a member of WHO Geneva, Technical Steering Committee on Child and Adolescent Health (2007-09). She has been a trainer in WHO programs and has received fellowships from both the Indian and American Academy of Pediatrics (AAP). She has many awards to her credit including Lady Doctor of the Millennium by IAP in 2001 and Certificate of Appreciation by AAP for successful organization of the first IAP-AAP CME in India in 2000. She is a former Professor of Pediatrics and a pioneer of adolescent health in India. She edited the first text book of adolescent medicine in India which is named after her and has an oration in her name instituted by the Adolescent Heath Chapter of IAP in 2006. Dr Bhave has many publications including book editions, chapter, and research papers to her credit. Her NGO, AACCI, conducts community programs for parents, teachers and students both from school and college for prevention of lifestyle diseases and has won many awards for their multicentral surveys of adolescent behaviors.

Alafia Samuels
University of the West Indies

Dr Alafia Samuels is the Director, George Alleyne Chronic Disease Research Centre, University of the West Indies (UWI), in Barbados. She is a medical doctor, trained at UWI in Jamaica. She holds a MPH (Masters in Public Health) and a PhD in Chronic Disease Epidemiology, both degrees awarded with honors from Johns Hopkins University. Past employment includes Advisor in Chronic Diseases at PAHO/WHO, Director of Outcomes at XL Health, and managing Primary Health Care Services in the South-East Region of the Ministry of Health, Jamaica. She is an appointed member of the multi-sectoral Barbados National NCD (Non-Communicable Diseases) Commission and was the principal author of the Barbados Ministry of Health Strategic Plan of Action for NCDs 2015-2019, and the CARICOM/PAHO Strategic Plan of Action for the Prevention and Control of Non-Communicable Diseases. Her research interests include policy and practice in NCD prevention and control, clinical quality of care and evaluation of NCD programs. She is the Principal Investigator of the IDRC funded evaluation of the CARICOM Heads of Government 2007 Non-Communicable Diseases Declaration of Port of Spain. alafiasam@gmail.com

Aman Pulungan
Indonesian Pediatric Society

Dr Aman Pulungan is the President of Indonesian Pediatric Society, Head of Endocrinology division Child Health Department at Cipto Mangunkusumo Hospital/Faculty of Medicine University of Indonesia, Committee for medical specialist deployment MOH Republic of Indonesia, President-Elect of Asia Pacific Pediatric Association, Standing Committee International Pediatric Association, Past President of Asia Pacific Paediatric Endocrine Society. For the past 8 years, he has been involved in many programs for Diabetes in Indonesia and in the region, amongst others, and is the project leader for the World Diabetes Foundation DM type 1 in Indonesia, and member of the Advisory Board for the International Society for Pediatric and Adolescent Diabetes. He initiated the formation of IKADAR, an organization for DM Families including patients, doctors and Educators. He took important roles in the formation of KAHAKI (Foundation for Congenital Adrenal Hyperplasia Families), Fosteo (Families Forum for Osteogenesis Imperfecta), TSI (Turner Society Indonesia). He is a member of organizations such as APPES, ESPE, ISPAD, International Fellow of American Academy of Pediatrics, GPED, DOHAD Society Endocrine Society, and Editorial board of International Journal of Pediatric Endocrinology. His research interests include Genetic of Pygmies Rampasasa Flores, Short stature and stunting, Congenital Hypothyroidism, Early life and metabolic syndrome and DM T2 and bone health in children.

Amy Eussen
International Human Rights Consultant

Amy Eussen is an Australian international public lawyer practicing in the field of international criminal law, humanitarian law, human rights (specifically child rights) and public health. She has a passion for international and domestic relations, international public law, health law, social justice and equality, politics and the promotion and protection of human rights through legal avenues. Ms. Eussen is currently based in the Netherlands and employed as an Associate Legal Officer directly to the President of the United Nations, to the President of the International Criminal Tribunal for the Former Yugoslavia (ICTY) and the Mechanism for International Criminal Tribunals (MICT) dealing with alleged violations of war crimes, crimes against humanity, and other human rights and humanitarian law violations. She is also an expert with the Justice Rapid Response for deployment on missions for investigations and inquiries for UN and international agencies into alleged violations of human rights and international humanitarian law. Ms. Eussen has experience in human rights litigation dealing with issues arising in Europe, Asia, Africa, Russia and South America and serves as the UN Coordinator and Human Rights Advisor for an Australian-based NGO, Caring & Living as Neighbors (CLAN), that provides a rights-based, community development approach, known as the five pillars, to children suffering living with chronic health conditions through Asia and the Middle East. She is also the pro bono Legal Advisor to World Childhood Cancer (formerly SIOP and ICCCPO).

Mychelle Farmer
American Academy of Pediatrics/Society for Adolescent Health and Medicine

Mychelle Farmer is a pediatrician with a public health background and sub-specialty training in adolescent medicine. She has significant experience in international delivery of adolescent health programming, with a focus on the integration of non-communicable disease (NCD) screening and prevention into primary care and community-based settings. Currently, Mychelle is the Chief Medical Officer for Advancing Synergy, an organization that seeks to improve access to technology and research for the prevention and control of NCDs. She is an active member of the NCD Child Governing Council, American Academy of Pediatrics, and the Society for Adolescent Health and Medicine. Previously, she was the Senior Non-Communicable Disease Advisor for Jhpiego and worked in a variety of countries to better prepare health care providers to address non-communicable diseases during the prenatal and postpartum periods. Mychelle has also worked with country programs to find ways to expand sexual and reproductive health services for adolescents and youth. She has a strong commitment to health services that are culturally relevant and technically excellent.

Molly Lepeska
AYUDA

Molly joined Health Action International in 2016 as a Technical Support Officer. She brings over ten years of experience in global health communications, advocacy and campaigning to the ACCISS Study team to help raise awareness and action to the access to insulin cause. Previously, she served as the Director of Communications for a youth-based diabetes empowerment organization, AYUDA, Inc., and before that, worked at the World AIDS Campaign creating and implementing global mobilization campaigns around HIV and human rights. She is also the Co-founder of the 100 Campaign and serves as a consultant and on various advisory groups that promote issues relating to non-communicable diseases, youth empowerment and access to insulin. As a person living with type 1 diabetes, Molly strongly believes in ensuring that all people in need have access to the medicine that has allowed her to not only live, but thrive, with diabetes since her diagnosis.

Molly holds a Master’s Degree in Life Science Communications from the University of Wisconsin–Madison and a Bachelor of Science degree in Radio-Television-Film from the University of Texas-Austin.

HRH Dina Mired
Union for International Cancer Control

HRH Princess Dina Mired, is a mother of a cancer survivor and global anti-cancer advocate. In November 2016, HRH Princess Dina was elected as President of the Union International for Cancer Control (UICC)- the largest cancer fighting organization- for the period 2018-2020. Testament to her outstanding leadership, she was the first Arab and non-medical professional to have been elected in in such a prestigious global post. Previously, HRH Princess Dina led and established the King Hussein Cancer Foundation (KHCF) from 2002 till June 2016. Princess Dina transformed the non-profit into an internationally known brand and leader not only in Jordan but also in the global movement for people affected by cancer.
She is a leading national and global figure in advocacy work on behalf of cancer patients and their families. She served as the Honorary Chairperson of the Jordan Breast Cancer Program (JBCP) 2007-2016. To date, JBCP remains the most successful national early detection and screening program saving the lives of thousands of women. Princess Dina is a fierce advocate in the fight against tobacco, both in Jordan and globally. Princess Dina served in the National Committee for Tobacco Control.
Princess Dina serves in several high-profile international roles In September 2011, Princess Dina was elected to deliver the keynote speech on behalf of all civil society at the opening of the United Nations General Assembly’s first ever High Level Meeting on non- communicable diseases (NCDs. Honorary President of Harvard University Global Task Force for Expanded Access to Cancer Control and Care in the Developing World; Ambassador for the Global Smoke-free Worksite Challenge; Honorary Chair of global steering committee for Tobacco Free Portfolios; Member of the advisory board of NCD child; Honorary Member of the Mediterranean Task Force for Cancer Control in Italy. HRH Princess Dina is a recipient of many awards. In 2015, she was awarded the medal of Honor from the International Agency for Research on Cancer (IARC) for her outstanding global work. In 2016 she was chosen by Susan Komen Foundation to be listed in the first ever - “More than Pink list “-for those who have made significant impact in the fight to end breast cancer. In 2016 she was also awarded the “Personality of the Year 2016 in the fight against breast cancer” by Zahra Breast Cancer Association of Saudi Arabia.

Jamal Raza
Karachi Children’s Hospital/Atfaal Welfare Society

Professor S. Jamal Raza is the Director of the National Institute of Child Health (NICH) in Karachi, Pakistan. He is also a professor of pediatric medicine and head of the pediatric endocrine unit at the NICH. Professor Raza received his MBBS from Dow Medical College and is a Member of the Royal College of Physicians London and Fellow of the College Physicians and Surgeons Pakistan. He is a lifetime member of the Pakistan Pediatric Association and founder and lifetime member of the Pakistan Endocrine Society. From 2012-2014, Professor Raza served as the Secretary General for the Pakistan Pediatric Association. Professor Raza is also the founder of the Atfaal Welfare Society, which works for the betterment of children at NICH. He is also a founder member and current President of Society of Pediatric Endocrinology in Pakistan. He is holding a position of Dean, Faculty of Pediatrics at the College of Physicians & Surgeons, Pakistan. Recently, he has been made Chairman of the NCD committee at Asia Pacific Pediatric Endocrine Society for the next 2 years.

Barbara Reynolds
University of Guyana

Barbara Reynolds is currently Deputy Vice-Chancellor (Academic Affairs) at the University of Guyana. Prior to this, she was Head of Education for Save the Children UK and prior to that spent some twenty-two years with UNICEF in a range of capacities, including representation and program assignments in education, child protection and innovation. Apart from promoting the prevention and mitigation of non-communicable diseases, Professor Reynolds has a keen interest in the developmental response to internally displaced persons, the role of the private sector in the delivery of basic social services and the integration of computer technologies in developmental and humanitarian response. She holds a B.A. in Education (USC), M.A. in Curriculum and Teaching (Howard), Diploma in Distance Education (London), Ed.D in International Education Development/Curriculum and Instruction (Columbia) and MSt in International Human Rights Law (Oxford).

Genevieve Bois
Young Professionals Chronic Disease Network

Geneviève trained as a doctor in Montréal, Canada and is currently finishing her training as a family doctor at McGill University. She was the spokesperson for the Québec Coalition for Tobacco Control, lobbying for better tobacco control measures in Québec and Canada and is involved in various aspect of NCD advocacy. She worked with The Young Professionals against Chronic Disease Network (YP-CDN) Community Director, and was on the Global Health Education Consortium (GHEC) and the Canadian Society of International Health (CSIH) Board. She is also the past Regional Coordinator for the Americas and Vice-President of Internal Affairs of the world’s largest medical student organizations, the International Federation of Medical Students' Associations (IFMSA). She spent one year with the Copenhagen School of Global Health working on projects for the NCDs unit, but also involved curriculum development for pre-departure training and global health ethics. Geneviève is passionate about NCDs, building healthy cities, and using the urban environment to influence health.

Jamie Rose Rodas
University of Toronto

Jamie Rose Rodas is a youth representative of the NCD Child Governing Council and an international consultant. She joined NCD Child in early 2013 with the inaugural secretariat, Caring and Living as Neighbours (CLAN), as its program manager. She continues to sit on CLAN's General Committee. Trained in global health and public health, she has worked on health promotion, health education, community engagement and capacity building projects in Canada and abroad. Rose holds a position as the program coordinator at the University of Toronto, Department of Family and Community Medicine, Global Health Program with a work focus on equitable primary health care systems, social justice, and vulnerable populations. Rose speaks fluent English and Spanish and elementary Mandarin. jr.rodas@utoronto.ca

 

 

Elizabeth Rowley
T1International

Elizabeth Rowley has lived with type 1 diabetes for over 20 years. She received a Master’s Degree in International Development and Humanitarian Emergencies from the London School of Economics and Political Science and founded T1International in 2013. T1International’s aim is to unite the diabetes community and advocate for equal access to insulin, diabetes supplies, medical care and education for all people living with type 1 diabetes, no matter where they live. The charity raises awareness about the challenges of life with Type 1 diabetes in resource-poor settings and tries to amplify the voices of people with diabetes by working closely with organizations on the ground around the globe. It also pushes for more data collection related to type 1 diabetes and access issues.

Victoria Watson
Cancer Care Ontario

Born and raised in Canada, Victoria Watson is a 26-year-old health policy analyst working in patient engagement and cancer screening. Her personal experiences with optimal healthcare motivated a life-long commitment to NCD advocacy and community engagement driven by the desire to achieve similar healthcare for youth in low-resource settings to that which is provided in developed countries. As a teenager, Victoria was an ambassador for Canada’s Children’s Wish Foundation, being a public speaker and sharing her story as a survivor to emphasize the need for integrated social support for cancer patients. Following her undergraduate in public policy and MSc. in Global Health, she applied her research and work experiences to better understand the social determinants to health that put youth at greater risk of NCDs, and what health systems can do to make care more accessible, affordable, and meaningful for diverse populations. This lead her to work at high-level global health organizations such as the Clinton Foundation, to working within hospitals in southern India. She currently splits her time between Ottawa and Toronto, and contributes to NCDChild as a Youth Voices Committee member. v.watsn@gmail.com